Uploaded November 2024 | Updated September 2026, 2 weeks ago
In this special Complex Care Journal Club podcast episode, co-hosts Drs. Kilby Mann and Kristie Malik interview presenters of posters and oral abstracts relevant to the care of children with medical complexity at the American Academy for Cerebral Palsy and Developmental Medicine (AACPDM) 78th Annual Meeting in Quebec City, Canada that took place October 23rd-26th 2024. Speakers describe the implications of their study findings, messages for patients and families, and priority areas for research that they hope can be investigated further by the complex care community in the coming years.
SPEAKERS
Tori Bahr, MD
MedPeds Complex Care Physician
Section Chief of Pediatrics
Gillette Children's, St. Paul, Minnesota
Laura Brunton, PT, PhD
Associate Professor
School of Physical Therapy
Western University, London, Ontario
Caitlin Cassidy, MD
Associate Professor
Departments of Physical Medicine & Rehabilitation and Pediatrics
Western University, London, Ontario
Adam Rosenbloom, MD, MPH
Complex Care Pediatrician
Dell Children's Medical Center
University of Texas at Austin, Dell Medical School
Cristina Sarmiento, MD
Assistant Professor
Department of Physical Medicine and Rehabilitation
University of Colorado Anschutz Medical Campus, Aurora, Colorado
Julie Stutzbach, PT, DPT, PhD
Assistant Professor
School of Rehabilitative and Health Sciences
Regis University, Denver, Colorado
HOSTS
Kristina Malik, MD
Assistant Professor of Pediatrics,
University of Colorado School of Medicine
Medical Director, KidStreet
Pediatrician, Special Care Clinic,
Children's Hospital Colorado
Kilby Mann, MD
Assistant Professor
Pediatric Rehabilitation Medicine
Children's Hospital Colorado
DATE
Initial publication date: November 11, 2024.
ARTICLES AND ADDITIONAL REFERENCES
• American Academy for Cerebral Palsy and Developmental Medicine (AACPDM), aacpdm.org
• AACPDM Complex Care Committee (aacpdm.org/about-us/committees/complex-care)
• Houtrow AJ, Hurwitz MB. A dearth of disability-related competencies in Accreditation Council for Graduate Medical Education's Milestones 2.0. PM R. 2024 Aug 23. doi: 10.1002/pmrj.13257. Epub ahead of print. PMID: 39177053.
• Fehlings D, Agnew B, Gimeno H, Harvey A, Himmelmann K, Lin JP, Mink JW, Monbaliu E, Rice J, Bohn E, Falck-Ytter Y. Pharmacological and neurosurgical management of cerebral palsy and dystonia: Clinical practice guideline update. Dev Med Child Neurol. 2024 Sep;66(9):1133-1147. doi: 10.1111/dmcn.15921. Epub 2024 Apr 19. PMID: 38640091.
• AACPDM Care Pathway Dystonia in Cerebral Palsy, aacpdm.org/publications/care-pathways/dystonia-in-cerebral-palsy
TRANSCRIPT
cdn.bfldr.com/D6LGWP8S/as/p9pj6g7sxn5kjmmgps5wnk4/111124_-_Complex_Care_at_the_American_Academy_for_Cerebral_Palsy_and_Developmental_Medicine_Annual_Meeting
Clinicians across healthcare professions, advocates, researchers, and patients/families are all encouraged to engage and provide feedback! You can recommend an article for discussion using this form: forms.gle/Bdxb86Sw5qq1uFhW6
Please visit: openpediatrics.org
OPENPediatrics™ is an interactive digital learning platform for healthcare clinicians sponsored by Boston Children's Hospital and in collaboration with the World Federation of Pediatric Intensive and Critical Care Societies. It is designed to promote the exchange of knowledge between healthcare providers around the world caring for critically ill children in all resource settings. The content includes internationally recognized experts teaching the full range of topics on the care of critically ill children. All content is peer-reviewed and open-access, thus at no expense to the user.
For further information on how to enroll, please email: openpediatrics@childrens.harvard.edu
Please note: OPENPediatrics does not support or control any related videos in the sidebar; these are placed by YouTube. We apologize for any inconvenience this may cause.
CITATION
Malik K, Bahr T, Brunton L, Cassidy C, Rosenbloom A, Sarmiento C, Stutzbach J, Mann K. Complex Care at the American Academy for Cerebral Palsy and Developmental Medicine Annual Meeting. 11/2024. OPENPediatrics. Online Podcast. Online Podcast. youtu.be/vlmKWNo4-mA.
In this special Complex Care Journal Club podcast episode, co-hosts Drs. Kilby Mann and Kristie Malik interview presenters of posters and oral abstracts relevant to the care of children with medical complexity at the American Academy for Cerebral Palsy and Developmental Medicine (AACPDM) 78th Annual Meeting in Quebec City, Canada that took place October 23rd-26th 2024. Speakers describe the implications of their study findings, messages for patients and families, and priority areas for research that they hope can be investigated further by the complex care community in the coming years.
SPEAKERS
Tori Bahr, MD
MedPeds Complex Care Physician
Section Chief of Pediatrics
Gillette Children's, St. Paul, Minnesota
Laura Brunton, PT, PhD
Associate Professor
School of Physical Therapy
Western University, London, Ontario
Caitlin Cassidy, MD
Associate Professor
Departments of Physical Medicine & Rehabilitation and Pediatrics
Western University, London, Ontario
Adam Rosenbloom, MD, MPH
Complex Care Pediatrician
Dell Children's Medical Center
University of Texas at Austin, Dell Medical School
Cristina Sarmiento, MD
Assistant Professor
Department of Physical Medicine and Rehabilitation
University of Colorado Anschutz Medical Campus, Aurora, Colorado
Julie Stutzbach, PT, DPT, PhD
Assistant Professor
School of Rehabilitative and Health Sciences
Regis University, Denver, Colorado
HOSTS
Kristina Malik, MD
Assistant Professor of Pediatrics,
University of Colorado School of Medicine
Medical Director, KidStreet
Pediatrician, Special Care Clinic,
Children's Hospital Colorado
Kilby Mann, MD
Assistant Professor
Pediatric Rehabilitation Medicine
Children's Hospital Colorado
DATE
Initial publication date: November 11, 2024.
ARTICLES AND ADDITIONAL REFERENCES
• American Academy for Cerebral Palsy and Developmental Medicine (AACPDM), aacpdm.org
• AACPDM Complex Care Committee (aacpdm.org/about-us/committees/complex-care)
• Houtrow AJ, Hurwitz MB. A dearth of disability-related competencies in Accreditation Council for Graduate Medical Education's Milestones 2.0. PM R. 2024 Aug 23. doi: 10.1002/pmrj.13257. Epub ahead of print. PMID: 39177053.
• Fehlings D, Agnew B, Gimeno H, Harvey A, Himmelmann K, Lin JP, Mink JW, Monbaliu E, Rice J, Bohn E, Falck-Ytter Y. Pharmacological and neurosurgical management of cerebral palsy and dystonia: Clinical practice guideline update. Dev Med Child Neurol. 2024 Sep;66(9):1133-1147. doi: 10.1111/dmcn.15921. Epub 2024 Apr 19. PMID: 38640091.
• AACPDM Care Pathway Dystonia in Cerebral Palsy, aacpdm.org/publications/care-pathways/dystonia-in-cerebral-palsy
TRANSCRIPT
cdn.bfldr.com/D6LGWP8S/as/p9pj6g7sxn5kjmmgps5wnk4/111124_-_Complex_Care_at_the_American_Academy_for_Cerebral_Palsy_and_Developmental_Medicine_Annual_Meeting
Clinicians across healthcare professions, advocates, researchers, and patients/families are all encouraged to engage and provide feedback! You can recommend an article for discussion using this form: forms.gle/Bdxb86Sw5qq1uFhW6
Please visit: openpediatrics.org
OPENPediatrics™ is an interactive digital learning platform for healthcare clinicians sponsored by Boston Children's Hospital and in collaboration with the World Federation of Pediatric Intensive and Critical Care Societies. It is designed to promote the exchange of knowledge between healthcare providers around the world caring for critically ill children in all resource settings. The content includes internationally recognized experts teaching the full range of topics on the care of critically ill children. All content is peer-reviewed and open-access, thus at no expense to the user.
For further information on how to enroll, please email: openpediatrics@childrens.harvard.edu
Please note: OPENPediatrics does not support or control any related videos in the sidebar; these are placed by YouTube. We apologize for any inconvenience this may cause.
CITATION
Malik K, Bahr T, Brunton L, Cassidy C, Rosenbloom A, Sarmiento C, Stutzbach J, Mann K. Complex Care at the American Academy for Cerebral Palsy and Developmental Medicine Annual Meeting. 11/2024. OPENPediatrics. Online Podcast. Online Podcast. youtu.be/vlmKWNo4-mA.







![Telling Their Stories: Discrimination at the Doctor for Children with Disabilities
In this Complex Care Journal Club podcast episode, Dr. Stefanie Ames discusses a qualitative study that explores family experiences of discrimination in health care for children with medical complexity and disability. She describes the value of partnering with people with lived experience in research, implications for clinical practice, and important next steps from this work.
SPEAKER
Stefanie Ames, MD, MS
Assistant Professor, Division of Critical Care
Department of Pediatrics, University of Utah School of Medicine
HOST
Kristina Malik, MD
Assistant Professor of Pediatrics
University of Colorado School of Medicine
Medical Director, KidStreet
Pediatrician, Special Care Clinic,
Childrens Hospital Colorado
DATES
Initial publication: September 6, 2023
JOURNAL CLUB ARTICLE
• Ames SG, Delaney RK, Houtrow AJ, et al. Perceived Disability-Based Discrimination in Health Care for Children With Medical Complexity. Pediatrics. 2023;152(1):e2022060975. doi:10.1542/peds.2022-060975
OTHER REFERENCES
• Cook S, Mauskar S, Berry JG. Discriminating Against Children With Medical Complexity. Pediatrics. 2023 Jul 1;152(1):e2023061604. doi: 10.1542/peds.2023-061604. PMID: 37357723.
Marshall W. Improving care for CMC is also a systems issue. [Comment on the article Perceived Disability-Based Discrimination in Health Care for Children With Medical Complexity]. Pediatrics July 2023.
TRANSCRIPT
https://op-docebo-images.s3.amazonaws.com/Transcripts/Discrimination+at+the+Doctor_Ames_090623.pdf
Clinicians across healthcare professions, advocates, researchers, and patients/families are all encouraged to engage and provide feedback! You can recommend an article for discussion using this form: forms.gle/Bdxb86Sw5qq1uFhW6
This episode introduces the Complex Care Journal Club Podcast, a monthly series that discusses emerging evidence in the care of children with medical complexity with authors of recently published research and explores implications for clinical practice for the interprofessional care team.
Learn more about our podcast here: https://www.openpediatrics.org/complexcarejournalclubpodcast
Please visit: www.openpediatrics.org
OPENPediatrics™ is an interactive digital learning platform for healthcare clinicians sponsored by Boston Childrens Hospital and in collaboration with the World Federation of Pediatric Intensive and Critical Care Societies. It is designed to promote the exchange of knowledge between healthcare providers around the world caring for critically ill children in all resource settings. The content includes internationally recognized experts teaching the full range of topics on the care of critically ill children. All content is peer-reviewed and open-access and thus at no expense to the user.
For further information on how to enroll, please email: openpediatrics@childrens.harvard.edu
Please note: OPENPediatrics does not support nor control any related videos in the sidebar, these are placed by YouTube. We apologize for any inconvenience this may cause.
CITATION
Ames SG, Malik K. Telling their Stories: Discrimination at the Doctor for Children with Disabilities. 09/2023. OPENPediatrics. Online Podcast. https://youtu.be/xkoS0qhCtiE. Telling Their Stories: Discrimination at the Doctor for Children with Disabilities](https://i.ytimg.com/vi/xkoS0qhCtiE/mqdefault.jpg)


