Uploaded December 2023 | Updated September 2026, 4 hours ago
Trustsphere aims to support the complex journeys of children and families living with chronic disease by addressing data siloes and offering a trusted digital infrastructure to share critical information such as patient generated data, care plans, and educational resources, between patients and their providers. In this presentation, we describe the co-creation of TrustSphere with patients, families and clinicians, its core features and functionalities and the results of a pilot study of TrustSphere in the BC Children’s Hospital Diabetes Clinic.
Shazhan Amed
Clinical Professor and Pediatric Endocrinologist, University of British Columbia and BC Children's Hospital
Please note: While live American Sign Language (ASL) interpretation and professional closed captioning were available during the event, they are regrettably not incorporated in these recordings due to technical issues.
If you require further support beyond YouTube's automatic closed captioning (CC), please reach out to OVHeducation@phsa.ca.
Trustsphere aims to support the complex journeys of children and families living with chronic disease by addressing data siloes and offering a trusted digital infrastructure to share critical information such as patient generated data, care plans, and educational resources, between patients and their providers. In this presentation, we describe the co-creation of TrustSphere with patients, families and clinicians, its core features and functionalities and the results of a pilot study of TrustSphere in the BC Children’s Hospital Diabetes Clinic.
Shazhan Amed
Clinical Professor and Pediatric Endocrinologist, University of British Columbia and BC Children's Hospital
Please note: While live American Sign Language (ASL) interpretation and professional closed captioning were available during the event, they are regrettably not incorporated in these recordings due to technical issues.
If you require further support beyond YouTube's automatic closed captioning (CC), please reach out to OVHeducation@phsa.ca.
