Uploaded January 2025 | Updated September 2026, 2 days ago
Dr. Stephanie Grach, MD, MS, shares her presentation on A New Path Forward for Horses and Zebras: Changing the Field of Medicine for EDS/HSD+ and Associated Conditions.
Presented at our 2024 conference: Understanding EDS/HSD+ Symptomology, Diagnoses & Treatment - A Guide for Primary Care Practitioners & Physician Specialists.
Our mission at EDS Canada Foundation is to help individuals overcome the challenges of living with Ehlers-Danlos Syndromes and other chronic pain diseases through knowledge, sharing resources, awareness, education, peer support, and research to find cures. Learn more at theilcfoundation.org
Below you will find a brief summary of Dr. Grach's presentation:
Stephanie Grach, an assistant professor of medicine and attending physician at the Mayo Clinic, discusses the challenges of recognizing and managing multi-system complex chronic diseases, particularly hypermobile Ehlers-Danlos syndrome (HEDS) and hypermobility spectrum disorder (HSD).
Grach highlights the historical neglect of these conditions within medicine, leading to under-diagnosis and misdiagnosis. She notes that while fibromyalgia has gained some recognition, it's often mistaken for HEDS/HSD, resulting in insufficient care for hypermobility-related pathologies.
She emphasizes the crucial role of research in improving understanding and management of these conditions but acknowledges the limitations of relying solely on research advancements for widespread change.
Grach addresses the need for effective communication strategies to bridge the knowledge gap between specialists and general practitioners, advocating for a shift in the medical paradigm that recognizes the significance of these complex conditions. She highlights the importance of incorporating HEDS/HSD into medical education, teaching learners to approach these conditions with the same seriousness as more familiar diagnoses.
Grach stresses the need for accessible resources and tools for clinicians, advocating for a comprehensive toolkit that could include educational materials, research papers, algorithms, and templates to facilitate better understanding and management of HEDS/HSD.
She concludes by calling for collaborative efforts to create and share resources that will improve medical practice and patient care experiences for individuals with hypermobile conditions.
Dr. Stephanie Grach, MD, MS, shares her presentation on A New Path Forward for Horses and Zebras: Changing the Field of Medicine for EDS/HSD+ and Associated Conditions.
Presented at our 2024 conference: Understanding EDS/HSD+ Symptomology, Diagnoses & Treatment - A Guide for Primary Care Practitioners & Physician Specialists.
Our mission at EDS Canada Foundation is to help individuals overcome the challenges of living with Ehlers-Danlos Syndromes and other chronic pain diseases through knowledge, sharing resources, awareness, education, peer support, and research to find cures. Learn more at theilcfoundation.org
Below you will find a brief summary of Dr. Grach's presentation:
Stephanie Grach, an assistant professor of medicine and attending physician at the Mayo Clinic, discusses the challenges of recognizing and managing multi-system complex chronic diseases, particularly hypermobile Ehlers-Danlos syndrome (HEDS) and hypermobility spectrum disorder (HSD).
Grach highlights the historical neglect of these conditions within medicine, leading to under-diagnosis and misdiagnosis. She notes that while fibromyalgia has gained some recognition, it's often mistaken for HEDS/HSD, resulting in insufficient care for hypermobility-related pathologies.
She emphasizes the crucial role of research in improving understanding and management of these conditions but acknowledges the limitations of relying solely on research advancements for widespread change.
Grach addresses the need for effective communication strategies to bridge the knowledge gap between specialists and general practitioners, advocating for a shift in the medical paradigm that recognizes the significance of these complex conditions. She highlights the importance of incorporating HEDS/HSD into medical education, teaching learners to approach these conditions with the same seriousness as more familiar diagnoses.
Grach stresses the need for accessible resources and tools for clinicians, advocating for a comprehensive toolkit that could include educational materials, research papers, algorithms, and templates to facilitate better understanding and management of HEDS/HSD.
She concludes by calling for collaborative efforts to create and share resources that will improve medical practice and patient care experiences for individuals with hypermobile conditions.
