Uploaded December 2024 | Updated September 2026, 1 week ago
At the 2024 RNDS, Leah Campbell shared her personal journey with aquaporin4-positive neuromyelitis optica spectrum disorder (NMOSD) and introduced the panel's focus on advocacy and awareness in rare neuroimmune conditions [00:00:20]. Jacinta Behne from The Guthy-Jackson Charitable Foundation highlighted their history and patient-centered approach to advocacy [00:03:50]. Julia Lefelar from The MOG Project explained their commitment to education and support for people who are diagnosed with MOG antibody disease (MOGAD) [00:06:20]. Jasmine Patel from The Sumaira Foundation discussed the importance of global advocacy and community building for people who are diagnosed NMOSD and MOGAD [00:10:45]. Please note that the information shared during this session is for informational purposes only and is not medical advice.
00:00 Introduction and Welcome
00:38 Leah Campbell's Advocacy Journey
03:02 Panel Introductions
07:20 Defining Patient Advocacy
12:50 Impactful Initiatives and Future Plans
21:41 Closing Remarks and Future Vision
At the 2024 RNDS, Leah Campbell shared her personal journey with aquaporin4-positive neuromyelitis optica spectrum disorder (NMOSD) and introduced the panel's focus on advocacy and awareness in rare neuroimmune conditions [00:00:20]. Jacinta Behne from The Guthy-Jackson Charitable Foundation highlighted their history and patient-centered approach to advocacy [00:03:50]. Julia Lefelar from The MOG Project explained their commitment to education and support for people who are diagnosed with MOG antibody disease (MOGAD) [00:06:20]. Jasmine Patel from The Sumaira Foundation discussed the importance of global advocacy and community building for people who are diagnosed NMOSD and MOGAD [00:10:45]. Please note that the information shared during this session is for informational purposes only and is not medical advice.
00:00 Introduction and Welcome
00:38 Leah Campbell's Advocacy Journey
03:02 Panel Introductions
07:20 Defining Patient Advocacy
12:50 Impactful Initiatives and Future Plans
21:41 Closing Remarks and Future Vision
