Medicare Administrative Contractors Alliance for Patient Access 2024-06-03 | You might think that Medicare coverage is consistent across the country, but that's not always the case. Many coverage decisions are made at the local level by Medicare Administrative Contractors.
The Diagnostic Odyssey Alliance for Patient Access 2024-05-30 | For patients with a rare disease, the process of getting the right diagnosis is so difficult and time-consuming that it has a name: the diagnostic odyssey.
A Roadmap to Better Gout Care Alliance for Patient Access 2024-05-21 | Over 9 million Americans have gout. What would it take to connect them with the care they deserve? The Alliance for Gout Awareness walks through five key steps in this video.
The Thyroid Eye Disease Experience: Mental Health Alliance for Patient Access 2024-05-06 | Hear from Ana Carolina Victoria, MD, FACS, and TED patient Julie Owens on the mental health experience with thyroid eye disease.
The Obesity & Mental Health Connection Alliance for Patient Access 2024-05-06 | Obesity is a chronic disease that affects nearly half of American adults. But many of them are also facing mental health challenges too.
Prescription Drug Affordability Boards & Patient Access Alliance for Patient Access 2024-04-30 | Lawmakers talk about making medication more affordable. But some of their policy approaches overlook what matters to patients.
[Webinar] Survey Briefing: The Indirect Impact of RSV Alliance for Patient Access 2024-04-04 | This survey briefing discusses the indirect impact and burden of RSV on babies, young children, their families and the health care providers who treat young RSV patients. Two surveys were conducted, one of parents who had at least one child contract RSV, and one of pediatric health care providers who treat babies and young children with RSV.
The Thyroid Eye Disease Experience Alliance for Patient Access 2024-02-29 | Hear from Ana Carolina Victoria, MD, FACS, and TED patient Julie Owens on their experience with thyroid eye disease.
Taking Serious Mental Illness Seriously Alliance for Patient Access 2024-01-19 | 14 million Americans have a serious mental illness like major depressive disorder, bipolar disorder or post-traumatic stress disorder. The right treatment can help these patients achieve stability and improve their well-being, but these treatments can only benefit patients if they are accessible.
Emerging Trends: What Employers Need to Know About Alternative Funding Programs & Drug Carveouts Alliance for Patient Access 2023-12-12 | ...
Alternative Funding Programs Alliance for Patient Access 2023-11-08 | When it comes to health, there's simply no alternative to timely treatment and patient-centered care.
Medicare and Obesity Treatment Alliance for Patient Access 2023-10-16 | Obesity is serious. But with proper treatment and coverage, Medicare patients can find their way to a healthy, happier life.
Thyroid Eye Disease Patient & Caregiver Event Alliance for Patient Access 2023-10-03 | On September 28, VHAC's Kimberly Serota spoke with board-certified ophthalmologist and oculoplastic surgeon Gary Joseph Lelli, MD, and patient advocate Fredy Reyes about living with and managing thyroid eye disease.
The Generic Drug Approval Process Alliance for Patient Access 2023-09-07 | Generic drugs play a critical role in the U.S. health care system, bringing down costs and helping millions of people access treatment. But how does the approval process work?
GAfPA Roundtable on the State of Clinical Trials in Brazil Alliance for Patient Access 2023-07-25 | ...
The Umbrella of Immunizations Alliance for Patient Access 2023-07-12 | To boost public health and maximize disease prevention, all immunizations should be treated the same.
Making Migraine Treatment Accessible Alliance for Patient Access 2023-07-11 | A migraine is more than just a headache. George Nissan, DO, explains that each patient needs to be treated differently, but health plans are standing in the way.
Bad Drug Ads Have Real-Life Consequences Alliance for Patient Access 2023-06-28 | By putting guard rails around “bad drug” ads, policymakers can help protect patients and promote a strong relationship between patients and their health care providers.
Why Bad Drug Ads are Bad for Patients Alliance for Patient Access 2023-06-28 | Physicians share concerns about how “bad drug” ads harm their patients.
Living Well With Thyroid Eye Disease Alliance for Patient Access 2023-05-31 | On May 25, 2023, VHAC's Josie Cooper spoke with Sonali Khachikian, MD, and patient advocate Wesley Duvall about living with and managing thyroid eye disease.
[Webinar] Gout Awareness Day Alliance for Patient Access 2023-05-18 | The Global Alliance for Patient Access hosted a webinar for Global Gout Awareness Day. Hear the clinical and patient perspectives on living with and managing gout.Speakers:- Gary Ho, co-founder of the Gout Support Group of America- Professor Tony Woolf, BSc, MBBS, FRCP- Arturo Loaiza-Bonilla, MD
Managing RSV’s Indirect Impact Alliance for Patient Access 2023-03-28 | A survey of 340 parents whose child caught RSV reveals the devastating burdens that families may experience when their child becomes ill. To manage the indirect impacts of RSV, policymakers must support innovation and ensure timely and equitable access to care and preventive interventions.Read the full survey report: instituteforpatientaccess.org/the-indirect-impact-of-rsv/.
Patient-Centered Care Shouldn’t be Rare Alliance for Patient Access 2023-02-28 | There are more than 7,000 rare diseases, and these conditions affect between 25 and 30 million Americans. Rare is everywhere.
Emilys RSV Story Alliance for Patient Access 2023-02-22 | Emily's daughter Presley caught RSV and passed away in November 2021. Now, Emily advocates and raises awareness about RSV.
Closing the Gap: Disparities & RSV Alliance for Patient Access 2023-02-01 | Much of the public is unaware of the severity of RSV. Patricia Whitley-Williams, MD, immediate past president of NFID and chief of Allergy, Immunology and Infectious Diseases at Rutgers Robert Wood Johnson Medical School, discusses health disparities that impact babies and young children with RSV.
Spotlight on Patient Access Alliance for Patient Access 2023-01-24 | Millions of Americans have a vision condition. The right treatment can help patients, but sometimes health plans’ red tape and utilization management tactics can block access to treatment.
The Burden of RSV Alliance for Patient Access 2023-01-18 | While RSV can lead to severe symptoms for babies and young children, the virus can also result in heavy financial and emotional burdens for families.
Understanding COVID-19 Vaccines Alliance for Patient Access 2022-12-08 | A broad portfolio of vaccines provides children, adolescents and adults protection against COVID-19. All have been thoroughly tested, proven safe and effective, and vetted and approved by drug regulatory agencies.
What is RSV? Alliance for Patient Access 2022-11-30 | Respiratory syncytial virus, also known as RSV, is a seasonal virus that affects nearly all infants and children before they are two years old.
The Troublemaker Alliance for Patient Access 2022-10-12 | General pediatrician Lynn Smitherman, MD, explains how the burden of RSV weighs heavily on babies, children and their families.
2022 Infant Health Policy Summit Alliance for Patient Access 2022-09-06 | Panel Timestamps:Congressional Update: Black Maternal Health Caucus - 7:27Finding Solutions to the Black Maternal Health Crisis - 30:13Redefining the Essential Care Team for Babies - 1:03:50The State of RSV Prevention - 1:49:40The Direct and Indirect Impact of RSV - 2:52:38Ensuring Donor Human Milk Quality and Safety - 3:05:37Drug, Formula and Product Shortages Impacting Infants and Children - 3:41:57
The Real Price of Non-Medical Switching Alliance for Patient Access 2022-08-30 | Patients with mental health conditions need consistent, reliable care. But sometimes, non-medical switching overrides a provider’s treatment decision, and recent data shows that non-medical switching is a common challenge mental health patients face.
Human Donor Milk Safety Alliance for Patient Access 2022-08-22 | While breastmilk is packed with nutrients, not all mothers can provide it for their babies. Human donor milk can help improve access, but improved regulations are needed to ensure that donor milk is safe for babies.
Overactive Bladder & Patient-Centered Care Alliance for Patient Access 2022-08-03 | As the U.S. population ages, overactive bladder will only become more prevalent. Now is the time for policy solutions that reduce barriers & improve access to patient-centered care.
Innovator Biologics vs. Biosimilars vs. Interchangeables Alliance for Patient Access 2022-07-14 | Biologics can provide valuable options for patients, helping them find the right treatment. There are three kinds of biologics: innovator biologics, biosimilars and interchangeable biosimilars.
Biomarker Testing Helps Cancer Patients Alliance for Patient Access 2022-07-06 | Cancer patients and their providers have a limited amount of time to determine the best treatment. Biomarker testing can help them get the information they need from the start.
Melanies RSV Story Alliance for Patient Access 2022-06-29 | Melanie and Dan's daughter Reagan was hospitalized for 10 days after she was diagnosed with RSV. Despite doing everything they could to protect their children from the virus, a few years later both of their twin sons were also hospitalized with RSV.
What to Expect From Asthma Care Alliance for Patient Access 2022-05-24 | Thanks to innovative treatment options, asthma patients aren't just surviving, they're thriving.
Gout & Uric Acid Alliance for Patient Access 2022-05-19 | Living a full life means getting gout under control. That starts with understanding and managing uric acid levels.
Dismantling Access Barriers to Obesity Treatments Alliance for Patient Access 2022-05-03 | Access to a full range of treatment options for obesity will support patient-centered care. But health plans are standing in the way.
Innovation: A Mothers Story Alliance for Patient Access 2022-04-27 | Breakthrough cures for cystic fibrosis start by promoting science and innovation.
Impact of Alzheimers Alliance for Patient Access 2022-04-26 | The burden of Alzheimer's and dementia continues to grow. But policymakers can help by acting now.
Rare Disease Advisory Councils Give Patients a Voice Alliance for Patient Access 2022-04-25 | People living with a rare disease often feel all alone. But Rare Disease Advisory Councils have begun giving rare disease patients a voice in policy discussions.
Sacrificing Quality for the QALY Alliance for Patient Access 2022-03-30 | Patients are more than a number. But the QALY doesn't see them that way.
Telehealth: The Balanced Approach Alliance for Patient Access 2022-03-23 | While telehealth meets patients where they are, in-person appointments are just as important for a patient’s health. By finding the right mix of virtual and in-person appointments, patients can receive care that best serves their needs.
Rare Disease Advisory Councils Alliance for Patient Access 2022-02-28 | Rare Disease Advisory Councils give patients with rare diseases a voice in policy discussions.
Cómo hablar con su proveedor de cuidados de salud sobre la gota Alliance for Patient Access 2022-01-31 | Hablar con el médico sobre la gota puede ser incómodo. Aquí hay 6 consejos para navegar la conversación.
