Alzheimers Research UK
Can young people get dementia too? | Alzheimers Research UK
updated
Dr Louise Kelly and Dr Jake Brooks shared their fascinating research into this field, and answered questions in our Q&A. Dr Susan Mitchell is Head of Policy at Alzheimer’s Research UK and chaired the discussion.
00:00 – Welcome and introduction
05:06 – Dr Louise Kelly
17:17 – Dr Jake Brooks
33:07 – Q&A, chaired by Dr Susan Mitchell
Our Dementia Research Infoline can answer questions about dementia research and signpost you to other sources of information and support. You can contact them on 0300 111 5 111 or by email infoline@alzheimersresearchuk.org
If you would like to find out about taking part in dementia research studies, check out Join Dementia Research joindementiaresearch.nihr.ac.uk
This event was recorded on Thursday 31 August 2023. All information presented was accurate at the time of recording.
We were pleased to be joined by Dr Vanessa Raymont, Dr Roy Jones, Dr Emer MacSweeney and our supporter Carli Pirie for a discussion on "Embedding research into clinical practice".
In this session, we hear from clinicians who have successfully integrated research in their clinics and private trial facilities. Through a Q&A with the audience, panel members discuss the challenges and solutions to including research in services and highlight some of the best practices used to achieve this. We also hear from our supporter Carli Pirie about personal research journey after her mum was diagnosed with a rare genetic form of Alzheimer’s disease in her late 40s.
We hope you enjoy this session, which was recorded live on the day. Our next Clinical Conference will be held on 10 November 2023 at the Royal College of Physicians, London and online. You can purchase your ticket now: alzheimers.eventsair.com/clinical-conference-2023/registration/Site/Register
00:03 – Welcome and introduction
08:12 – Prof Fiona Ducotterd
25:07 – Prof Paul Brennan
36:10 – Q&A
Our Dementia Research Infoline can answer questions about dementia research and signpost you to other sources of information and support. You can contact them on 0300 111 5 111 or by email infoline@alzheimersresearchuk.org
If you would like to find out about taking part in dementia research studies, check out Join Dementia Research www.joindementiaresearch.nihr.ac.uk
This event was recorded on Tuesday 25 April 2023. All information presented was accurate at the time of recording.
00:00 – Welcome and introduction
04:59 – Prof Jon Schott – introduction and “What does a cure mean for you in your work?”
12:59 – Prof Selina Wray – introduction and “What does a cure mean for you in your work?”
16:01 – David Thomas – introduction and “What does a cure mean for you in your work?”
19:27 – What would a cure look like in real life?
28:03 – How ARUK are raising the importance of dementia research in UK government.
35:26 – What is the relationship between ARUK and pharmaceutical companies like Biogen?
39:01 – If a cure can be found, will parts of the brain that are lost be able to be restored or are they lost forever?
42:22 – It’s not just Alzheimer’s disease, what about other types of dementia?
49:17 – Do you consider finding a cure to dementia as valuable as research on diagnosis and which one would you prioritise?
52:46 – How far ahead of symptoms appearing might one actually need to start taking a drug to prevent amyloid or tau build-up in the first place?
57:18 – Prof Selina Wray - one key summary from the event
59:57 – David Thomas - one key summary from the event
59:44 – Prof Jon Schott – one key summary from the event
1:02:27 – Closing
Our Dementia Research Infoline can answer questions about dementia research and signpost you to other sources of information and support. You can contact them on 0300 111 5 111 or by email infoline@alzheimersresearchuk.org
If you would like to find out about taking part in dementia research studies, check out Join Dementia Research www.joindementiaresearch.nihr.ac.uk
This event was recorded on Tuesday 27 June 2023. All information presented was accurate at the time of recording.
That was the reason our brilliant fundraiser James Aston and Professor James Rowe, our Chief Scientific Officer, decided to take part in the challenge. They also found they had something in common – a desire to raise vital funds for dementia research.
James Aston took part in the trek as part of a wider year-long series of fundraising challenges. His inspiration is his dad, David, who is living with frontotemporal dementia (FTD).
“I’m so proud to be supporting dementia research by taking on these challenges. In the past few months, I’ve learnt so much about the research that is being carried out, and it is only positive news! However, it still needs vital funding to keep the progress in motion, and one day discover a cure for this awful condition.”
As Professor of Cognitive Neurology at the University of Cambridge and a practicing consultant neurologist, James Rowe knows just how important treks like this one are to supporting researchers. Together we stand a chance, #ForACure.
To keep up to date with our research, make sure to follow us on:
Facebook: https://www.facebook.com/AlzheimersRe...
Twitter: twitter.com/AlzResearchUK
Instagram: https://www.instagram.com/alzheimersr...
LinkedIn: https://uk.linkedin.com/company/alzhe...
In recent months we have seen breakthroughs in the form of Alzheimer's drugs lecanemab and donanemab. These first-generation drugs are far from the end of the story, but they are proof we are on the right track. We must keep this momentum going.
Alzheimer's Research UK will not stop until every person is free from the heartbreak of dementia.
But to achieve this, we need you to keep supporting dementia research. Your backing will get us there.
Our Director of Research, Dr Susan Kohlhaas, calls on you to join us.
Stand #ForACure 🟧
alzheimersresearchuk.org/campaign/for-a-cure/?utm_campaign=foracure&utm_source=short-link&utm_medium=direct
Over 1.2 million people in the UK will have dementia by 2040. That's 30% more than the number of people living with the condition today.
There are more than 140 dementia drugs in development right now. There is fresh hope and real momentum. We are on a new pathway that will lead us to a cure.
It's time for change.. We are driving the search for a cure, but we need your support.
Stand with us #ForACure 🟧
As the UK’s leading dementia research charity, we are working to revolutionise the way we treat, diagnose and prevent dementia. And then, we will find a way to cure it.
To do this, we’re investing in the best research, powering the most forward-thinking scientists and joining forces with world-class organisations.
With your support, we promise we will not stop until dementia can no longer destroy lives. Join us at alzres.uk/foracure
In this video, Sophie and Louise share their own experiences undergoing genetic testing for familial, or inherited, forms of dementia.
For more information about whether genetic testing might be appropriate for you, you can talk to your GP or visit this link to hear Prof Nick Fox (Professor of Clinical Neurology, University College London and Consultant Neurologist at the National Hospital for Neurology and Neurosurgery) answer some frequently asked questions about genetic testing: INSERT LINK
We were pleased to be joined by Dr Charles Marshall, from Queen Mary University of London, and Dr Shahid Zaman, from the University of Cambridge, for a discussion on "Tackling Inequalities in a Diverse Dementia Population".
Some groups within our society are more heavily impacted by dementia, either through being more at risk of the diseases that cause dementia or because they are more likely to experience poorer health outcomes.
Understanding more about these inequalities enables us to take steps to address them in clinical practice, public policy and research.
In this session, Dr Charles Marshall discusses the role of ethnicity and deprivation, while Dr Shahid Zaman considers the key issues in dementia in Down’s Syndrome.
We hope you enjoy this session, which was recorded live on the day. Our next Clinical Conference will be held on 10 November 2023 at the Royal College of Physicians, London and online.
More details, including how to secure tickets, will be made available shortly. Sign up to receive updates here: alzheimersresearchuk.org/about-us/our-influence/for-clinicians/register-your-interest-in-our-clinical-conferences
We hope you enjoy this session, which was recorded live on the day.
Our next Clinical Conference will be held on 10 November 2023 at the Royal College of Physicians, London and online. More details, including how to secure tickets, will be made available shortly.
To keep up to date with our research, make sure to follow us on:
Facebook: facebook.com/AlzheimersResearchUK
Twitter: twitter.com/AlzResearchUK
Instagram: instagram.com/alzheimersresearchuk
LinkedIn: uk.linkedin.com/company/alzheimer's-research-uk
0:01 #1.What is the difference between dementia risk genes and rare familial genes?
1:05 #2.Which genes are tested for?
1:45 #3.What happens in families with directly inherit dementia?
3:20 #4.What are the common misconceptions?
4:14 #5.Do I need to know which gene runs in my family?
9:50 #6.How do I get a genetic test for dementia?
11:09 #7.What if my doctor won't refer me for the test?
11:56 #8.Will getting my results affect my life insurance or mortgage?
Having a test to look for a faulty gene that causes dementia is only appropriate for a very small number of people. This is because only around one in 100 cases of dementia are directly inherited. In these cases, there is an obvious pattern of a parent passing it on to their child (or children) throughout every generation of a family, often developing symptoms in their 40s and 50s.
In this video, Prof Nick Fox, Director of the Dementia Research Centre at UCL (and specialist in familial Alzheimer’s disease) answers frequently asked questions about getting a genetic test for dementia.
Rare Dementia Support runs specialist support services for people living with, or affected by, rare dementias. Visit their website at raredementiasupport.org
The charity also provides regular support group meetings, newsletters, telephone contact networks and access to specialist information and advice.
The UCL Dementia Research Centre is a hub for patient-centred research into dementias. As well as clinical studies and trials in Alzheimer’s disease and other common causes of dementia, they have particular expertise in young onset, inherited and unusual dementias. Find out more here: ucl.ac.uk/drc/dementia-research-centre
To hear personal stories from people who have undergone genetic testing for dementia, click here: youtu.be/-WHTixi6ewI
For more information about genes and dementia, visit our website: alzheimersresearchuk.org/dementia-information/genes-and-dementia
To keep up to date with our research, make sure to follow us on:
Facebook: facebook.com/AlzheimersResearchUK
Twitter: twitter.com/AlzResearchUK
Instagram: instagram.com/alzheimersresearchuk
LinkedIn: uk.linkedin.com/company/alzheimer's-research-uk
0:02 #2. How do I get advice and support about genetic testing for dementia?
3:01 #3.Do many people collect their results?
6:20 #4.What support is available after I get my results?
6:53 #5.Should I talk to my family before having the test?
8:16 #6.My family don't agree with my decision. What should I do?
9:18 #7.Do I need to tell my family and loved ones what my results are?
Having a test to look for a faulty gene that causes dementia is only appropriate for a very small number of people. This is because only around one in 100 cases of dementia are directly inherited. In these cases, there is an obvious pattern of a parent passing it on to their child (or children) throughout every generation of a family, often developing symptoms in their 40s and 50s.
In this video, Prof Nick Fox, Director of the Dementia Research Centre at UCL (and specialist in familial Alzheimer’s disease) answers frequently asked questions about getting a genetic test for dementia.
Rare Dementia Support runs specialist support services for people living with, or affected by, rare dementias. Visit their website at raredementiasupport.org
The charity also provides regular support group meetings, newsletters, telephone contact networks and access to specialist information and advice.
The UCL Dementia Research Centre is a hub for patient-centred research into dementias. As well as clinical studies and trials in Alzheimer’s disease and other common causes of dementia, they have particular expertise in young onset, inherited and unusual dementias. Find out more here: https://www.ucl.ac.uk/drc/dementia-re...
To hear personal stories from people who have undergone genetic testing for dementia, click here:
• Genetic testing f...
For more information about genes and dementia, visit our website: https://www.alzheimersresearchuk.org/...
To keep up to date with our research, make sure to follow us on:
Facebook: https://www.facebook.com/AlzheimersRe...
Twitter: twitter.com/AlzResearchUK
Instagram: https://www.instagram.com/alzheimersr...
LinkedIn: https://uk.linkedin.com/company/alzhe...
0:01 #2.What does genetic testing for dementia involve?
1:03 #3. Who can access genetic counselling in the UK?
2:10 #4.What do you discuss in appointments?
2:59 #5.How long will the process take?
3:45 #6.What does a genetic counsellor do?
4:29 #7.Are genetic counsellors experts in dementia?
Having a test to look for a faulty gene that causes dementia is only appropriate for a very small number of people. This is because only around one in 100 cases of dementia are directly inherited. In these cases, there is an obvious pattern of a parent passing it on to their child (or children) throughout every generation of a family, often developing symptoms in their 40s and 50s.
In this video, Prof Nick Fox, Director of the Dementia Research Centre at UCL (and specialist in familial Alzheimer’s disease) answers frequently asked questions about getting a genetic test for dementia.
Rare Dementia Support runs specialist support services for people living with, or affected by, rare dementias. Visit their website at raredementiasupport.org
The charity also provides regular support group meetings, newsletters, telephone contact networks and access to specialist information and advice.
The UCL Dementia Research Centre is a hub for patient-centred research into dementias. As well as clinical studies and trials in Alzheimer’s disease and other common causes of dementia, they have particular expertise in young onset, inherited and unusual dementias. Find out more here: ucl.ac.uk/drc/dementia-research-centre
To hear personal stories from people who have undergone genetic testing for dementia, click here: youtu.be/-WHTixi6ewI
For more information about genes and dementia, visit our website: alzheimersresearchuk.org/dementia-information/genes-and-dementia
To keep up to date with our research, make sure to follow us on:
Facebook: facebook.com/AlzheimersResearchUK
Twitter: twitter.com/AlzResearchUK
Instagram: instagram.com/alzheimersresearchuk
LinkedIn: uk.linkedin.com/company/alzheimer's-research-uk
Quitting smoking is one of the best ways to improve your health. Not only reducing your risk of heart disease, cancer and stroke, but also reducing your risk of dementia.
Search ‘NHS smokefree’ for free access to extensive advice and local support on quitting.
Make 8 March 2023 your day to quit.
00:00 – Welcome and introduction
05:00 – Dr Chris Hardy
21:00 – Dr Eithne Heffernan
32:14 – Q&A
Our Dementia Research Infoline can answer questions about dementia research and signpost you to other sources of information and support. You can contact them on 0300 111 5 111 or by email infoline@alzheimersresearchuk.org
If you would like to find out about taking part in dementia research studies, check out Join Dementia Research www.joindementiaresearch.nihr.ac.uk
If you have specific questions about hearing loss, you can find more information from the Royal National Institute for Deaf People (RNID) here: rnid.org.uk
This event was recorded on Thursday 9 February 2022. All information presented was accurate at the time of recording.
To take part in the live Q&A sessions register for these events here: alzheimersresearchuk.org/research/lab-notes
To keep up to date with the latest research follow us on:
Facebook: facebook.com/AlzheimersResearchUK
Instagram: instagram.com/alzheimersresearchuk/?hl=en
Twitter: twitter.com/AlzResearchUK
Linkedin: linkedin.com/company/alzheimer%27s-research-uk
This #InternationalDayofWomenandGirlsinScience, we’re bringing attention to this imbalance and championing the contributions made by female researchers, like Selina, to dementia research.
Read our full report here: alzheimersresearchuk.org/about-us/our-influence/policy-work/reports/the-impact-of-dementia-on-women
We are piloting several approaches to improve diversity in the field and will continue to champion female researchers like Selina, but we can’t do this alone.
Research organisations and funders, including the life sciences industry, NHS, government, academic institutions, and charities should have clear plans and share best practice to “break the bias” and demonstrate that female researchers can participate on an equal basis with male researchers.
Hear from our Chief Scientific Officer, Prof James Rowe and Head of Research, Dr Rosa Sancho and ambassador for Alzheimer’s Research UK, Scott Mitchell.
Hosted by Public Engagement Manager, Dr Katy Bray, the speakers also explored new dementia treatments on the horizon, including the latest news surrounding lecanemab. Discussions were also had into the importance of growing awareness of dementia research in government and with politicians.
Our Dementia Research Infoline can answer questions about dementia research and signpost you to other sources of information and support. You can contact them on 0300 111 5 111 or by email infoline@alzheimersresearchuk.org
If you would like to find out about taking part in dementia research studies, check out Join Dementia Research www.joindementiaresearch.nihr.ac.uk
This event was recorded on Thursday 15 December 2022. All information presented was accurate at the time of recording.
Dr Shahid Zaman shared explained the current understanding of the links between Down’s syndrome and dementia. Dr Stephanie Brown discussed her research which is looking into the links between sleep and dementia in people with Down’s syndrome.
00:00 – Welcome and introduction
05:21 – John and Rebecca
17:00 – Dr Shahid Zaman
34:35 – Dr Stephanie Brown
43:00 – Q&A
Our Dementia Research Infoline can answer questions about dementia research and signpost you to other sources of information and support. You can contact them on 0300 111 5 111 or by email infoline@alzheimersresearchuk.org
If you would like to find out about taking part in dementia research studies, check out Join Dementia Research www.joindementiaresearch.nihr.ac.uk
This event was recorded on Thursday 27 October 2022. All information presented was accurate at the time of recording.
Since the passing of his late wife Dame Barbara Windsor, Scott has worked tirelessly to raise awareness of dementia and funds for research.
In 2019 Scott ran the London Marathon with friends, helping to raise over £150,000 for Alzheimer’s Research UK’s Dementia Revolution campaign.
Since Barbara’s death with Alzheimer’s disease in 2020, Scott has been made an Ambassador for the charity as he continues her important legacy.
Find out more about the awards and our winners: alzheimersresearchuk.org/about-us/how-we-do-it/our-supporters/supporter-awards-2022/nominees-winners/?utm_source=youtube&utm_medium=organic-social&utm_campaign=supporter-awards
In 2021, they organised the #RunTheNetwork challenge which saw them run between all of the universities in their network, surpassing their 500-mile target and raising more than £3,500.
This year they decided to go one step further (or several in fact) and took on their #RunTheBrain challenge, walking, swimming, running and cycling 668 miles – the total length of the brain capillaries! This time they raised £1,572.
Their creativity and drive to complete both challenges is inspiring and the team are committed to raising vital awareness of vascular health in dementia and the array of work being done in the field of dementia research.
Find out more about the awards and our winners: alzheimersresearchuk.org/about-us/how-we-do-it/our-supporters/supporter-awards-2022/nominees-winners/?utm_source=youtube&utm_medium=organic-social&utm_campaign=supporter-awards
When the pandemic hit, through store pledges, cycling challenges, sales of personalised ribbons and more, it went on to raise £125,000 during 2021 despite store closures.
Having raised £800,000 to date, it aims to hit £1 million by the end of 2022.
This inspired so many of us here at Alzheimer’s Research UK and we are working harder than ever before with scientists and partner organisations to make breakthroughs possible.
Find out more about the awards and our winners: alzheimersresearchuk.org/about-us/how-we-do-it/our-supporters/supporter-awards-2022/nominees-winners/?utm_source=youtube&utm_medium=organic-social&utm_campaign=supporter-awards
Karen set out to continuously walk around the coast of Britain and Ireland in January 2019 – and clocked up over 10,000 miles completing her challenge on World Alzheimer's Day in September last year.
During her 32-month challenge, Karen raised a staggering £112,633 and a huge amount of awareness, both online, with a following of 6,000 people on her Facebook group, and in-person as she spoke to many people during her journey.
Find out more about the awards and our winners: alzheimersresearchuk.org/about-us/how-we-do-it/our-supporters/supporter-awards-2022/nominees-winners/?utm_source=youtube&utm_medium=organic-social&utm_campaign=supporter-awards
Over the years he has been a tireless campaigner and speaker for the charity, having undertaken dozens of awareness talks and attended fundraising lunches on behalf of the charity across the north west of England.
Find out more about the awards and our winners: alzheimersresearchuk.org/about-us/how-we-do-it/our-supporters/supporter-awards-2022/nominees-winners/?utm_source=youtube&utm_medium=organic-social&utm_campaign=supporter-awards
Frank is a grandfather and retired businessman from Oldham who rowed 3,000 miles across the Atlantic Ocean, solo, in the name of dementia research.
His incredible challenge raised over £1.2M for Alzheimer's Research UK, with £500,000 in match-funding from our long-standing supporters at the Iceland Foods Charitable Foundation.
Find out more about the awards and our winners: alzheimersresearchuk.org/about-us/how-we-do-it/our-supporters/supporter-awards-2022/nominees-winners/?utm_source=youtube&utm_medium=organic-social&utm_campaign=supporter-awards
Sue has completed a variety of fundraising activities, from running the London Marathon in 2018 to having her head shaved and even having our logo tattooed on her arm!
In total she has raised over £30,000 for Alzheimer's Research UK and shared her story in numerous ways to help boost awareness of vascular dementia and the need for more research.
Find out more about the awards and our winners: alzheimersresearchuk.org/about-us/how-we-do-it/our-supporters/supporter-awards-2022/nominees-winners/?utm_source=youtube&utm_medium=organic-social&utm_campaign=supporter-awards
When her great uncle Ian was diagnosed with Alzheimer’s disease in 2020 Heidi wanted to do something to help him and so she took on the challenge to walk the equivalent distance between Land’s End and John O’Groats.
She started in March 2021 and reached her 603-mile target in June this year, raising over £16,500 for dementia research!
Find out more about the awards and our winners: alzheimersresearchuk.org/about-us/how-we-do-it/our-supporters/supporter-awards-2022/nominees-winners/?utm_source=youtube&utm_medium=organic-social&utm_campaign=supporter-awards
Loughborough students have supported the charity through challenges, including ‘Dash to Dubrovnik’ and the ‘Iceland Fire and Ice Trek’.
Fundraisers have worked tirelessly, from completing virtual marathons, to only eating orange food for a week, and collecting donations at this year’s FA Cup Final at Wembley Arena!
Find out more about the awards and our winners: alzheimersresearchuk.org/about-us/how-we-do-it/our-supporters/supporter-awards-2022/nominees-winners/?utm_source=youtube&utm_medium=organic-social&utm_campaign=supporter-awards
Stuart is a shining light of positivity across the #TeamARUK Facebook groups, encouraging and supporting his fellow runners.
He volunteers as a community speaker and helps the Shropshire fundraising group. He also raises awareness as a Media & Communications Volunteer and has been fundamental in shaping our partnership with parkrun.
Find out more about the awards and our winners: alzheimersresearchuk.org/about-us/how-we-do-it/our-supporters/supporter-awards-2022/nominees-winners/?utm_source=youtube&utm_medium=organic-social&utm_campaign=supporter-awards
Professor Selina Wray is a Senior Research Fellow funded by Alzheimer’s Research UK.
She frequently acts as an ambassador for dementia researchers in our fundraising activities, hosting lab tours for supporters and politicians, speaking at public events and appearing in the media.
If this wasn’t enough she has also combined her love for running with fundraising, having run both the London Marathon and the Great North Run for Alzheimer’s Research UK!
Find out more about the awards and our winners: alzheimersresearchuk.org/about-us/how-we-do-it/our-supporters/supporter-awards-2022/nominees-winners/?utm_source=youtube&utm_medium=organic-social&utm_campaign=supporter-awards
Our nine categories, celebrate incredible fundraising feats, scientists helping us beyond the lab and dedicated supporter groups and corporate partners.
We also have a special category, Outstanding Commitment, for those supporters who have gone the extra mile, literally in some cases, for dementia research.
These awards celebrate just a few of our supporters but without all of YOU we could not push for progress in dementia research. So we'd like to take this moment to thank you all for everything you have done and continue to do, for the future of dementia research.
Find out more about the awards and our winners: alzheimersresearchuk.org/about-us/how-we-do-it/our-supporters/supporter-awards-2022/nominees-winners/?utm_source=youtube&utm_medium=organic-social&utm_campaign=supporter-awards
Sadly, her husband Dick lived with Alzheimer’s disease, and the couple featured in a film for our Connections series, highlighting the impact Dick’s condition has had on their relationship.
Dick has sadly since passed away, so this film and award is in his honour.
Find out more about the awards and our winners: alzheimersresearchuk.org/about-us/how-we-do-it/our-supporters/supporter-awards-2022/nominees-winners/?utm_source=youtube&utm_medium=organic-social&utm_campaign=supporter-awards
Katie is a prominent spokesperson for the charity in her role as a media & communications volunteer and community speaker, sharing her personal experience to inspire others to get involved.
She is also Chair of the Shropshire Fundraising Group, which she helped set up in 2017. The group has raised an amazing £115,000 for dementia research!
Find out more about the awards and our winners: alzheimersresearchuk.org/about-us/how-we-do-it/our-supporters/supporter-awards-2022/nominees-winners/?utm_source=youtube&utm_medium=organic-social&utm_campaign=supporter-awards
Dan took on a once-in-a-lifetime challenge: flying the length of the UK in a paramotor after he lost both of his grandparents to Alzheimer’s disease.
His journey involved more than 34 hours of flying, with his father Alan driving a support vehicle alongside him. He completed the 800-mile journey, raising £13,000 for dementia research.
Find out more about the awards and our winners: alzheimersresearchuk.org/about-us/how-we-do-it/our-supporters/supporter-awards-2022/nominees-winners/?utm_source=youtube&utm_medium=organic-social&utm_campaign=supporter-awards
Dr Neil Graham shared his research and work into head injuries, including his investigations into biological signatures in the blood. Christine Ridout discussed a report which was published on Tuesday 16 August 2022. This report sheds light on where some of the gaps are in our current knowledge and understanding of the link between brain injuries and dementia, and where the future research should be focussing.
00:00 – Welcome and introduction
05:41 – Dr Neil Graham
26:26 – Christine Ridout
43:00 – Q&A
Our Dementia Research Infoline can answer questions about dementia research and signpost you to other sources of information and support. You can contact them on 0300 111 5 111 or by email infoline@alzheimersresearchuk.org
If you would like to find out about taking part in dementia research studies, check out Join Dementia Research www.joindementiaresearch.nihr.ac.uk
This event was recorded on Thursday 18 August 2022. All information presented was accurate at the time of recording.
Our awards will be a digital celebration, hosted on our website, to ensure as many people as possible are able to celebrate our nominees and winners.
Find out more here: alzheimersresearchuk.org/about-us/how-we-do-it/our-supporters/supporter-awards-2022
London Marathon for us in memory of his grandmother Monica, who sadly died with dementia in 2019.
To sponsor Greg, visit his JustGiving page: http://justgiving.com/gregoshea
This moving film showcases how Mariel and her family have tried to keep Ray connected to the world around him, even as he lost the ability to communicate with them.
For more information, visit www.alzheimersresearchuk.org/bid-for-a-breakthrough
Thanks to Bally's Corporation, owners of online bingo site Jackpotjoy, for kindly donating the dresses to Alzheimer's Research UK.
Our Early Detection of Neurodegenerative diseases (EDoN) initiative is harnessing the power of wearable technology and AI. It sets out to develop a wearable device, like a smartwatch, that can identify the earliest signs of the diseases that cause dementia, years before symptoms appear.
Dr Dennis Chan discussed the importance of early detection. Today, the diseases that cause dementia are diagnosed when symptoms like memory loss appear. To have the best chance of halting them, we need to intervene decades earlier, when these diseases first take hold. Sarah Wilson shared some of her initial findings from the first EDoN study, including some of the perspective of patients and clinicians who could use a digital tool in the future.
00:00 – Welcome and introduction
06:14 – Dr Dennis Chan
20:31 – Sarah Wilson
31:09 – Q&A
Our Dementia Research Infoline can answer questions about dementia research and signpost you to other sources of information and support. You can contact them on 0300 111 5 111 or by email infoline@alzheimersresearchuk.org
If you would like to find out about taking part in dementia research studies, check out Join Dementia Research www.joindementiaresearch.nihr.ac.uk
This event was recorded on Wednesday 8 June 2022. All information presented was accurate at the time of recording.


