Establishing a Road Map to Overcome Barriers to EDS Care | Dr. Jordan Jones & Dr. William Black @theilcfoundation
Establishing a Road Map to Overcome Barriers to EDS Care | Dr. Jordan Jones & Dr. William Black  @theilcfoundation
Uploaded June 2023 | Updated September 2026, 2 days ago
Dr. Jordan T. Jones, DO, MS, Associate Professor of Pediatrics, Division of Rheumatology, & Dr. William R. Black, PhD, Assistant Professor of Pediatrics, Division of Pediatrics at Children's Mercy Kansas City, present their research on Overcoming Barriers to Ehlers Danlos Syndrome.

Presented at the June 2023 ILC Conference: Fitting the Pieces Together & the 10% Rule

Our mission at The ILC Foundation is to help individuals overcome the challenges of living with Ehlers-Danlos Syndromes and other chronic pain diseases through knowledge, sharing resources, awareness, education, peer support, and research to find cures. Learn more at theilcfoundation.org
Establishing a Road Map to Overcome Barriers to EDS Care | Dr. Jordan Jones & Dr. William BlackQ&A with Dr. Bryan MacLeodMast Cell Activation Syndrome - Pain and Neurological Manifestations | Dr. Virginia McEwen, MD, CCFPDr. Pradeep Chopra, MD | Managing pain in EDS: Connecting the Dots Part 2James Rutka MD, PhD | Neurological Manifestations of EDS | 2016HeatherDr. Lawrence B. Afrin, MD, Immunology and Allergy: Mast Cell 101Integrative Clinical Management of hEDS and its Common Comorbidities | Dr. Brayden Yellman, MDNicoleta Woinarosky, BSocSc, & Raoul Englebert, PhD: EDS in Children & AdultsWelcome to Our 2024 Conference: Understanding EDS/HSD+ Symptomology, Diagnoses and TreatmentDenise Livingston, Patient PresentationDr. Paula Harvey, BMBS, PhD, FRACP | CCS Position Statement on POTS
The ILC Ehlers Danlos & Chronic Pain Foundation |

Establishing a Road Map to Overcome Barriers to EDS Care | Dr. Jordan Jones & Dr. William Black

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