Eddie Vedder surprises boy diagnosed with life-changing genetic disorder on stage at WE Day @WEMOVEMENT
Eddie Vedder surprises boy diagnosed with life-changing genetic disorder on stage at WE Day  @WEMOVEMENT
Uploaded August 2019 | Updated September 2026, 1 week ago
Eli and his sister Lily are inviting the world to #ComeSayHi, they know that the more we understand each other and celebrate our differences the better the world will be. Pearl Jam frontman Eddie Vedder, and everyone at WE Day, want to spread Eli's message. A simple two-letter word can open up doors, help us raise awareness, and cure EB.

The WE Day special will be aired on ABC, Friday, Aug. 9 at 8 p.m. ET/7 p.m. CT. Featuring host Neil Patrick Harris and chart-topping performers and iconic celebrities, including Mahershala Ali, Chance The Rapper, Selena Gomez, Joe Jonas, Bill Nye, Natalie Portman, Lilly Singh, Hailee Steinfeld, Pentatonix, Meghan Trainor, and Eddie Vedder. People tune in to the WE Day Special to find hope, optimism and ideas that will inspire them to get doing and create big, lasting change.

Thank you to our friends at Door Knocker Media for making this project possible.

About EB Research Partnership
ebresearch.org
Founded in 2010 by a group of dedicated parents and Jill and Eddie Vedder of Pearl Jam, EB Research Partnership is the largest 501c3 nonprofit funding research to find a cure for Epidermolysis Bullosa (EB). EB is a group of devastating and life-threatening genetic skin disorders that affect children from birth.

About WE:
WE is an organization that brings people together and gives them the tools to change the world. A unique family of organizations, WE is made up of WE Charity, empowering change with resources that create sustainable impact, and ME to WE, a social enterprise that creates socially conscious products and experiences that allow people to do good through their everyday choices. The celebration of that change happens at WE Day – inspiring stadium-sized life changing events that take place around the world. A movement of 3.4 million young people supporting 2,500+ local and global causes, we’ve provided more than 1 million people with clean water and built 1,000 schools and schoolrooms overseas, giving more than 200,000 children access to education. WE was founded more than 20 years ago by humanitarians, activists and social entrepreneurs, brothers Craig and Marc Kielburger.

Join the WE movement today at we.org

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Learn how young people can help end child labor in 2019
cnn.com/2019/03/13/opinions/craig-kielburger-young-people-end-child-labor/index.html
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Eddie Vedder surprises boy diagnosed with life-changing genetic disorder on stage at WE Day

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