Uploaded August 2021 | Updated September 2026, 3 weeks ago
You all indicated that you would, indeed, be interested in a video going over the full information from the autism mom survey that I conducted. If you aren't familiar to what this is referencing, you may want to watch my video, In Defense of Autism Moms: youtube.com/watch?v=T9gqx66eStI
I think there are a small amount of free responses that weren't read aloud, but I'm confident nearly all were. If you want to check out the data yourself and make sure you didn't miss any responses, the survey results can be found here: docs.google.com/forms/d/e/1FAIpQLSe9bn6SYPY4ILiqTUyK7bEZg_yCsKOku2x9kcE6jgmTSqtoFg/viewanalytics
Yes, this is LONG! Feel free to skip to questions/sections that interest you. I've timestamped them for your convenience.
Timestamps/Sections:
00:00 - Introduction
01:14 - How many autistic children do you have?
01:40 - What level of autism does your child have?
02:23 - Do you have non-autistic children?
02:53 - Are you autistic/do you have autism?
03:21 - How well do you think you understand your autistic child?
03:47 - How well would you rate your relationship with your autistic child?
04:35 - What, if any, therapy is your child enrolled in?
06:57 - How did you feel when you first found out about your child's diagnosis?
14:50 - How do you feel about your child's diagnosis now?
23:20 - Would you consider yourself an "autism mom"?
24:18 - How well would you rate your support system?
24:51 - On an average week, how would you rate your stress level?
25:10 - Rate how much you feel that stress is related to your child being autistic.
25:51 - Why did you give the above rating?
36:00 - Do you participate in autism awareness events?
36:22 - Which do you prefer? (Awareness vs Acceptance)
37:44 - How well do you think those around you understand your child's autism?
38:12 - How well do you think people understand you as a mother of an autistic child?
38:54 - Is there anything you'd like people to know about being the mother of an autistic child?
50:32 - If you'd like to expand on anything or explain any prior answers further, feel free to use this space to do so.
55:14 - Further Charts & Data Comparisons
1:00:49 - Conclusion
MERCH: stephanie-bethany.creator-spring.com
Become a channel member!: youtube.com/channel/UCpSxFn3gz2xMbof_EDumN3A/join
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My website: stephaniebethany.com
Support my channel and become a Patron!: patreon.com/stephaniebethany
Or give once at ko-fi.com/stephaniebethany
Sensory Tiles:
cobyandbam.com/?ref=stephanie [be sure to use code stephanie783 at checkout for 20% off!]
-Please note that if you do buy through the link and use my code, I will receive a small commission at no cost to you. Thank you for supporting the channel!-
You all indicated that you would, indeed, be interested in a video going over the full information from the autism mom survey that I conducted. If you aren't familiar to what this is referencing, you may want to watch my video, In Defense of Autism Moms: youtube.com/watch?v=T9gqx66eStI
I think there are a small amount of free responses that weren't read aloud, but I'm confident nearly all were. If you want to check out the data yourself and make sure you didn't miss any responses, the survey results can be found here: docs.google.com/forms/d/e/1FAIpQLSe9bn6SYPY4ILiqTUyK7bEZg_yCsKOku2x9kcE6jgmTSqtoFg/viewanalytics
Yes, this is LONG! Feel free to skip to questions/sections that interest you. I've timestamped them for your convenience.
Timestamps/Sections:
00:00 - Introduction
01:14 - How many autistic children do you have?
01:40 - What level of autism does your child have?
02:23 - Do you have non-autistic children?
02:53 - Are you autistic/do you have autism?
03:21 - How well do you think you understand your autistic child?
03:47 - How well would you rate your relationship with your autistic child?
04:35 - What, if any, therapy is your child enrolled in?
06:57 - How did you feel when you first found out about your child's diagnosis?
14:50 - How do you feel about your child's diagnosis now?
23:20 - Would you consider yourself an "autism mom"?
24:18 - How well would you rate your support system?
24:51 - On an average week, how would you rate your stress level?
25:10 - Rate how much you feel that stress is related to your child being autistic.
25:51 - Why did you give the above rating?
36:00 - Do you participate in autism awareness events?
36:22 - Which do you prefer? (Awareness vs Acceptance)
37:44 - How well do you think those around you understand your child's autism?
38:12 - How well do you think people understand you as a mother of an autistic child?
38:54 - Is there anything you'd like people to know about being the mother of an autistic child?
50:32 - If you'd like to expand on anything or explain any prior answers further, feel free to use this space to do so.
55:14 - Further Charts & Data Comparisons
1:00:49 - Conclusion
MERCH: stephanie-bethany.creator-spring.com
Become a channel member!: youtube.com/channel/UCpSxFn3gz2xMbof_EDumN3A/join
Follow me on Facebook: facebook.com/stephaniebethanyyt
Follow me on Instagram: instagram.com/stephanie_bethany
My website: stephaniebethany.com
Support my channel and become a Patron!: patreon.com/stephaniebethany
Or give once at ko-fi.com/stephaniebethany
Sensory Tiles:
cobyandbam.com/?ref=stephanie [be sure to use code stephanie783 at checkout for 20% off!]
-Please note that if you do buy through the link and use my code, I will receive a small commission at no cost to you. Thank you for supporting the channel!-


![Pathological Demand Avoidance - A Subset of Autism?
While demand avoidance is a thing a lot of people deal with, this takes it to a whole new level. Learn about what pathological demand avoidance is, if its a subset of autism, and ways that can help when interacting with those with PDA (especially parents). If you suspect you or your loved one has PDA, definitely check out pdasociety.org.uk
In this video, I explore research and information regarding what pathological demand avoidance is, some of the theories around it, as well as the limited available research. I share some of my own thoughts, examples, and experiences as well as help to interpret more confusing academic language into understandable, yet still accurate and detailed, language for the average person looking to understand more. This video is embedded on my website here: https://www.stephaniebethany.com/blog/pathological-demand-avoidance-a-subset-of-autism for those who prefer a text-based format with in-text citations. However, this is my own original work with the inclusion of outside references and sources, cited.
References/Further Reading:
Gillberg, C., Gillberg, I., Thompson, L., Biskupsto, R., & Billstedt, E. (2015). Extreme (pathological’) demand avoidance in autism: A general population study in the Faroe Islands. European Child & Adolescent Psychiatry, 24(8), 979–984. https://doi.org/10.1007/s00787-014-0647-3
O’Nions, E., Gould, J., Christie, P., Gillberg, C., Viding, E., & Happé, F. (2016). Identifying features of “pathological demand avoidance” using the Diagnostic Interview for Social and Communication Disorders (DISCO). European Child & Adolescent Psychiatry, 25(4), 407–419. https://doi.org/10.1007/s00787-015-0740-2
O’Nions, E., Viding, E., Quinlan, E., Pidgeon, C., Happé, F., Floyd, C., & Gould, J. (2018). Dimensions of difficulty in children reported to have an autism spectrum diagnosis and features of extreme/‘pathological’ demand avoidance. Child & Adolescent Mental Health, 23(3), 220–227. https://doi.org/10.1111/camh.12242
PDA - a guide for autistic adults. (n.d.). Retrieved April 6, 2021, from https://www.autism.org.uk/advice-and-guidance/topics/diagnosis/pda/autistic-adults
PDAadmin. (n.d.). Helpful approaches—Children. PDA Society. Retrieved April 6, 2021, from https://www.pdasociety.org.uk/life-with-pda-menu/family-life-intro/helpful-approaches-children/
MERCH: stephanie-bethany.myteespring.co
Become a channel member!: https://www.youtube.com/channel/UCpSxFn3gz2xMbof_EDumN3A/join
Follow me on Facebook: https://www.facebook.com/stephaniebethanyyt
Support my channel and become a Patron!: https://patreon.com/stephaniebethany
Sensory Tiles:
https://cobyandbam.com/?ref=stephanie [be sure to use code stephanie783 at checkout for 20% off!]
-Please note that if you do buy through the link and use my code, I will receive a small commission at no cost to you. Thank you for supporting the channel!- Pathological Demand Avoidance - A Subset of Autism?](https://i.ytimg.com/vi/VRio3dp5zZM/mqdefault.jpg)




![Faking Autism (& Other Disorders)
In this video, Im going to share my thoughts and perspective regarding the increasing phenomena of people faking or mimicking disorders online for popularity or other reasons. I also cover some of my updated thoughts surrounding self-diagnosis.
References:
[trigger warning for r-word] Dr Dacious. (2020, October 21). TikToker FAKES Having Autism For Clout And Money🤢| (MilezJJ EXPOSED!). https://www.youtube.com/watch?v=WlQJeAmvOwQ
King, R. B. (2020). Mindsets are contagious: The social contagion of implicit theories of intelligence among classmates. British Journal of Educational Psychology, 90(2), 349–363. https://doi.org/10.1111/bjep.12285
Müller-Vahl, K. R., Pisarenko, A., Jakubovski, E., & Fremer, C. (2022). Stop that! It’s not Tourette’s but a new type of mass sociogenic illness. Brain, 145(2), 476–480. https://doi.org/10.1093/brain/awab316
Olvera, C., Stebbins, G. T., Goetz, C. G., & Kompoliti, K. (2021). Tics: A Pandemic Within a Pandemic. Movement Disorders Clinical Practice, 8(8), 1200–1205. https://doi.org/10.1002/mdc3.13316
MERCH: https://stephanie-bethany.creator-spring.com/
Become a channel member!: https://www.youtube.com/channel/UCpSxFn3gz2xMbof_EDumN3A/join
Follow me on Facebook: https://www.facebook.com/stephaniebethanyyt
Follow me on Instagram: https://www.instagram.com/stephanie_bethany/
My website: https://www.stephaniebethany.com/
Support my channel and become a Patron!: https://patreon.com/stephaniebethany
Or give once at https://ko-fi.com/stephaniebethany Faking Autism (& Other Disorders)](https://i.ytimg.com/vi/XQTY3E9k4c8/mqdefault.jpg)


