Uploaded January 2025 | Updated September 2026, 3 days ago
Listen to these patients describe the ups and downs, the triumphs and setbacks, of living with paroxysmal nocturnal hemoglobinuria, or PNH. Recorded September 2022.
#PNH #paroxysmalnocturnalhemoblobinuria #PNHpatients
For more like this, please watch:
"Living with PNH"- from the 2022 Buffalo Patient and Family Hybrid Conference with Dr. Bart Scott: aamds.org/webinar/living-pnh-2022-buffalo-patient-and-family-hybrid-conference
"Advances in the Treatment of PNH" with Dr. Jaroslaw Maciejewski aamds.org/webinar/advances-treatment-pnh
Listen to these patients describe the ups and downs, the triumphs and setbacks, of living with paroxysmal nocturnal hemoglobinuria, or PNH. Recorded September 2022.
#PNH #paroxysmalnocturnalhemoblobinuria #PNHpatients
For more like this, please watch:
"Living with PNH"- from the 2022 Buffalo Patient and Family Hybrid Conference with Dr. Bart Scott: aamds.org/webinar/living-pnh-2022-buffalo-patient-and-family-hybrid-conference
"Advances in the Treatment of PNH" with Dr. Jaroslaw Maciejewski aamds.org/webinar/advances-treatment-pnh










